Meet the Advocates

Rian Terveer-Couperus

Rian represents the Dutch patient advocacy for ELBCC. She is also a patient advocate for the Breast Cancer Organisation Netherlands (BVN) and Zorgbelang Fryslân.

Siobhán Freeney

Siobhán heads and represents Lobular Ireland within ELBCC and founded beingdense.com, which aims at raising awareness for the impact of breast density on the diagnosis and treatment of breast cancer, in particular ILC.

Claire Louise Turner

Claire represents the UK for ELBCC and is working with other patient advocates, researchers and clinicians to develop a UK equivalent of Lobular Breast Cancer Alliance.

Tone Lien

Tone is from Norway and is trying to raise awareness and gather women to focus on the differences between ductal and lobular breast cancer in Norway. She is representing the Norwegian Breast Cancer society. She hopes to gather women from the Scandinavian countries in focusing on lobular breast cancer treatment and follow up.